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Coming Home

 

It’s easy to forget the pain.

We all do it. As a woman and a mother, I’m convinced that if more women remembered the discomfort of pregnancy and the pain of childbirth, there would be a lot more only children in this world. But as time goes by, we forget.

The same holds true for my knee surgery. It was only a little over 5 weeks ago, but I set the date for my other knee to be replaced in my follow-up appointment earlier this week. Just like any other choice we willingly make to go through pain, for whatever reason, we do it because there’s a promise of something better on the other side.

Back to the familiar and wonderful feeling of being in control.

Despite going through many years of often excruciating knee pain, that memory is already fading — perhaps because it was temporarily replaced by post-op pain and healing. Before, I knew there was only a limited amount of improvement I could possibly see; now, every day brings a noticeable improvement.

Forgetting pain is a good and natural thing. Forgetting the lessons, though? The things you swear to yourself you’ll never, ever do, again? No. I caused irreparable harm by allowing myself to become so overweight that I damaged parts of my body. Typically, people who need total knee replacements are at least 10 to 15 years older than I am, and my doctor first brought it up with me roughly 12 years ago.

We’re humans, though, and we often tend to forget the lessons learned in times of stress and return to our previous norms. So when, by necessity, I had to change my normal way of eating because of surgery, and I gained weight because of it, I feared that part of me that might see that as a return to normal — the normal I knew for most of my adult life.

I found myself yearning for the feeling I have when I am totally in control. That’s where I feel the best. It’s my comfort zone, and where my body and brain moves toward. The best part? That’s the normal I’ve come to know over the last nearly five years, rather than the destructive normal that came before.

Sometimes, the lessons learned aren’t enough to keep us from repeating mistakes of the past, but every day, this feels a bit more like coming home. The path to home isn’t far away, now, at all.

 

Am I The Same Girl

 

My recovery is finally at a point where I’m sick and tired of being cooped up in the house. When I leave, it’s for physical therapy, or for brief trips out; at the moment, I feel caged up and I’m ready to fly the coop.

It’s got me thinking about the things I am looking forward to doing — not just because I’ve got a new knee that doesn’t limit me like the old one did (well, to a point, it still does; I’m not quite at 100%, yet), but because I put in the hard work to lose enough weight and get in good enough shape that I’m on the verge of being able to do a lot of things previously off limits. These are just a few of the things I’m looking forward to doing.

Top of Pinnacle Mountain — I’ve been there.

Hiking. A couple of my friends post photos of their hiking trips. Mountains, waterfalls, woodland trails. These are all things I absolutely loved doing, once upon a time before my body became my enemy. I long for the outdoors, being able to hike without limitation and thought.

Swimming. I grew up across the street from a lake and I spent the vast majority of my first 16 years of life on the lake. Any chance I could, I was was swimming, canoeing, sailing, and in the winter, ice skating. I must have been a fish in a former life; I live to be near water. My best vacations are waterfront somewhere. A gym I used to belong to had a pool, and it was a sad day when I realized that swimming was out; my goto swimming stroke is the breaststroke and the frog kick put sideways pressure on my knee to a point where it buckled.

There’s not much scarier than having to fight the natural reaction to a buckling knee: gasping. You don’t gasp when swimming — not without water in your lungs. For my own safety, I had to stop swimming laps. I hated that; it was like a piece of me, gone. There has always been something ethereal to me in the ability to slice through the water, suspended and floating. I imagine it’s much like flying.

Dancing. I can’t say I’ve ever been a good dancer, but who says you have to be good at something in order to enjoy it?

Thinking less. This is the big one. Until you’ve been physically limited, it’s hard to understand how much active thought goes into just existing. As an example, we were part of a group of friends who played bar trivia every week at a restaurant that set aside their bar area for trivia. It was popular, so unless we got there early, finding a place to sit could be a real challenge.

I hated going there because of the crowd. I felt claustrophobic there. I knew that once I was seated, I wouldn’t even be able to get up and use the restroom, because that would mean asking any number of people to move so I could get out of my seat — and then back to it. I honestly felt like I wouldn’t be able to get out in an emergency. I felt literally trapped.

My physical limitations — both my size and my knees — meant I was constantly having to think about things those without these issues likely rarely think about. Will that chair hold me? The hostess is sitting us in a booth — will I fit? Can I walk that far, and if I can’t, how can I break up the walk so I have a place to sit and rest?

This has been a constant and ongoing process for me, and although I was able to leave the size component behind, the physical limits caused by bad knees are about to be behind me. My right knee was in very bad shape; my left will also be replaced but isn’t as bad. My right one would randomly buckle, lock, or twinge so badly that I’d nearly fall in an attempt to get weight off of it. Not so with the other, and while I don’t know yet when it’ll be replaced, it’s not going to hold me back in the same way the right one did. (I’ll likely schedule the second surgery next Tuesday, at my one month follow-up.)

I am excited to test that out. We’re going camping in a little more than a week; while I’m still recovering and I know I’ll have to take it easy, it’s still going to be different for me. I can actually trust my knee, now, to not do stupid things when I put my weight on it. There’s huge power in just knowing that joint isn’t going to suddenly do something stupid. I can put one foot in front of the other, and unless I’m testing out some dorky dance moves, I should stay upright and moving forward like a normal person would.

Me? Normal? How cool is that?

This is what I wanted: living life with fewer limitations. There are always limitations for everyone, but if I can do something to improve, that’s what I want to do, because handicapping myself was the dumbest, most oppressive thing I ever did to myself.

I’m still that same girl. Just better.

 

Two Steps Forward – One Step Back

 

Over the past week, my progress has accelerated somewhat — to a point where my physical therapist moved me from a walker to a cane, and the walker is being tucked away for my next knee surgery.

When you’re in recovery, it seems like the process moves in slow motion. While I saw a little improvement each day, I have spent an embarrassing amount of time over the last 17 days crying, in pain, arguing with myself about whether I’ve been lying to myself about my abilities. Beating myself up for not preparing better before surgery. Wondering if I’m really cut out for this.

Just keep moving forward.

Until this week, anyway. I knew I was making progress when my physical therapist kept trying me on new things to see how I’d do instead of repeating the same training over and over again. I’ve never been quite as happy to be able to step over a plastic cup by actually bending my knee enough to do it, rather than compensating in some way. It’s simple things, but they’re big, too.

Some might see this as a form of regression; I spent a long time using a cane before I could reliably and steadily walk around my neighborhood. And here I am, again, actually happy to be moved back to a cane. I know this time it won’t take me nearly as long to get my stability back, and once the pain from newness wears off my knee, I’ll be able to build back up to the amount of walking I was doing previously — and surpass it.

Likewise, I finally stepped on a scale and I know how much weight I’ve gained. Yes, it’s a setback. No, I’m not thrilled that I’ve put on a few pounds. The good news is that instead of letting the old voices that used to screw with my head convince me that I should just keep eating and ignore weight gain, to my detriment, I know with certainty that I’m in control. I didn’t come this far, after all, to let recovery defeat me.

A lot has changed in 17 days; even more will change in the weeks to come as I learn, train, and test myself on the way back to where I was before I started this process. I know some finding it frustrating to make progress and take steps backward, but I see this as a necessary part of moving forward; even losing one step for every two taken is moving forward.

 

Baby I Kneed Your Lovin’

 

One of my knees is 56 years old, and the other is 11 days old.

The last week has been devoted to my nifty new body part, basically giving it an introduction to life at La Casa by punishing it into submission. Its first days of life have been spent being strapped into an apparatus that automatically bends it 6 hours a day, taking it for walks — whether it likes them or not, forcing it to bend more and more in routine sessions, and taking it to visit to people who specialize in making it do things it doesn’t presently feel all that cheerful about doing.

I want my new knee to know this isn’t typical life around these parts. There’s about a week and a half more to go of the bendy thing and the ankle stranglers will be cleaned and relegated to a box early next week, waiting for the next time. After that, we’ll settle into a normal lifetime of exercising, walking, occasionally visiting Those Who Bend and Straighten, as well as letting my brain do other things than calculate how much time I’ve got left to be strapped into the bendy thing before I can chill out with the ice packs. (CPM machines are marvels of therapy, but they aren’t much fun.)

Not my knees, but I don’t take any bologna.

I’ve come to have a nearly zen relationship with ice packs. There is nothing more comforting on my baby knee than to be wrapped in something cold after being subjected to exercise bikes, leg lifts, calve raises, hamstring stretches. It’s the equivalent of a cold beer on a really hot day.

In the opposite direction, my baby knee has introduced me to the wonderful world of People Giving Us Food, which is awesome, but somewhat unkind to the scale. It’s been hard to wrap my mind around that my body currently needs more nourishment than it usually requires, thanks to baby knee; hubby lost weight after his second surgery. I have not done the same. Far from it. But next Monday comes a marking point: as my baby knee and I make the transition in the third week of recovery, I’ll be returning to my normal way of eating.

I have absolutely adored and appreciated the kindness of others, but my hips have been enjoying it far too much, so the shift back to sane eating is now in countdown mode. Goodbye, cruel carbs!

After that? Perhaps a normal life for a bit, working at losing the weight that’s come to revisit in recent weeks, all in prep for introducing another baby knee to the world. But that one ought to be a bit easier.

Be Prepared

 

So here I am, three days after total knee replacement surgery, surprised that I have relatively coherent thought and even more surprised that I fared as well as I did.

I’ll probably jump around on my observations a bit; I’ll be on some entertaining pain meds for a bit and — well — staying focused on any given thing isn’t my strong point at the moment. (Squirrel!)

I’m always surprised when my weight isn’t an issue, because I’ve lived the majority of my life where it has been, particularly in medical circumstances. If anyone at the hospital thought it was a concern, they didn’t say so, but in my experience, I’d find that unlikely. Any time weight was mentioned, it was me doing the mentioning; I did have an issue where my epidural for surgery didn’t wear off as quickly as expected and I couldn’t lift/feel/move my legs when the physical therapy folks came by. They asked me if lifting my legs had ever been an issue before surgery; I mentioned that yeah, in a way it had been since I used to weigh 371 pounds and mobility was definitely an issue.

SQUIRREL!

But otherwise? No. I got a very kind high five from a charge nurse when I brought it up; after all, I was (a) graduating to the next phase of my physical existence and (b) drugged, and therefore, I don’t recall why I mentioned it.

I was surprised when two women managed to move me around on a sheet. You know, pick me up and move me where they needed me. I know this is one of the more common skills in a medical setting, but I don’t recall anyone ever doing that before, and it felt extremely odd to be lifted. Even odder to not have them call in male assistance.

As for my recovery, I’ve also been surprised. Other than the snafu of the epidural, my pain rarely got over a 4 out of 10, I was in decent spirits (and happy to be alive), the staff at the hospital was great, and not only did the surgery go off without a hitch, but the surgeon used a new method of sealing my incision that’s only been in use for his office for a week. Half the patients got it; I was in the lucky half.

I head to physical therapy next — and this is where the physical and mental work begins. The physical is expected; I just didn’t think it would start before I arrived. My surgeon advised my husband that yes, bone spurs were blocking my range of motion in my right leg; I knew this. I could neither bend my knee to even a 90-degree angle (normal upright sitting posture) or flatten it. I also knew my knee was out of alignment as it progressively worsened over the years, but I didn’t realize it would require straightening my knee.

Sure, that makes sense, but my muscles and ligaments have compensated for years, and now comes not only the retraining of those groups but my own mental blocks regarding what I can and can’t do. I have not climbed or descended stairs normally in decades, just as an example.

In a lot of ways, though, I realize what I’m facing; I’ve been here, before, both with being my husband’s caretaker through two knee surgeries, as well as progressing from temporary wheelchair and cane to around 8K steps a day. That process took years; this one will be accelerated in comparison.

I’ve been both prepared and surprised by this short three days. I’m looking forward to what comes next — and the reassurance that when the left knee is replaced, it won’t be as complicated as the right one. It isn’t as deformed as the right one was.

One final note, I asked what the chances were of getting my removed knee parts as a paperweight set. That was a no-go, but I’m not sure I really wanted to see it, anyway.

I Will Survive, Revisited

 

If you’ve followed my blog for any length of time, you know that for the last year or so, I’ve included a song for each blog. I usually tack it on the end, and whatever meaning you derive from it is up to you. I used “I Will Survive” a little over a year ago, but didn’t include why this particular old disco hit holds special meaning to me.

This time, I’m going to invite you into some of the darkest moments of my young life, when I was scared, furious, disappointed, shattered. I haven’t talked about my Inner Walt in a long time, because that voice has grown steadily quieter; that’s the voice of my (long dead) father, telling me that I wasn’t good enough, not strong enough, not pretty enough, not talented enough, not smart enough.

I graduated high school when I was 17; it wasn’t early — I was just young for my class. I graduated with the full expectation of attending college in the fall, with full academic and music scholarships. I quit my full-time job, packed my things, and just a couple days before I was to leave, my father decided otherwise. Just before the fall semester was to start, he pulled me out of college. I was a minor; he was allowed to do that. His selfish reasons were entirely his own, but I was put in the unenviable position of having to beg for my job back, mostly because he had left his job, and made no effort to find another.

In a matter of a couple weeks, I went from being a kid with a dream to an adult having to help support a deadbeat father.

This song — Gloria Gaynor’s I Will Survive — became my personal battle cry. I had a 45 single, and I used to play it when he wasn’t around, belting it out. I was furious with him; he was an unstable man, and this was just another event in a series of abuses toward my mother and myself.

You’re not snuffing *my* torch, Jeff.

To make a long and painful story short, I picked myself up and kept working toward my goals. I never gave up on my dream of college. I never gave up on trying to improve my lot. Not long after that fateful autumn, a chain of events led to him deserting my mother and me, which turned out to be one of the best things to ever happen to either of us.

That chain reaction started with him walking in on me one day when I was off from work, belting out I Will Survive at the top of my lungs, along with the record player. He was furious and we had a screaming fight, but it was truly the first time I actually fought back; I usually just hid in my room until the storm blew over, but not this time. I stood up to him, and I kept standing up to him until the day he left.

Over the following few years, I managed to fight my way back to college, where I majored in music therapy and music education. It’s no coincidence that these songs I choose have meaning, friends; music is its own behavioral therapy. Although I ended up not choosing that as a career path, music has always been my pulse.

A couple summers ago, when I was in Mexico, the band at the resort played — you guessed it — I Will Survive. Like everyone else there, I sang along, and then the singer handed me the microphone. And I sang it. I belted it out. The meaning for me, now, is different; and victorious.

When I sang along with the resort band, I was sitting in a wheelchair. I was in a prison of my own making. I have fought hard to find my way out, and in just a few short days from now, I’ll take the next step toward breaking the chains that hold me back. Like those days many years ago, I’m in charge of my own fate, and I will work hard to be free of the things that bind me.

In just a few short days, I’ll have the first of two knee replacement surgeries. For a while, it’ll likely seem like I’m retracing the steps I had to take to get out of that wheelchair, walk on my own, build up stamina and control, and move forward — but I’ve done it, before.

I will survive.

 

Don’t Hold Me Down

 

At the moment, my weight is all over the place. I had hoped to split the difference before knee surgery; you know, actually weight as much as I’ve lost. I’ve been that close at my low; a mere 3 pounds or so above it.

But I’m letting impending surgery get in my head. I’m carrying both excess water weight and probably a few pounds of just flat out real weight — meaning I have weight to re-lose. I’m nowhere near endangering my surgery, but I’ve noticed that when my weight occasionally drifts up (usually because of something daunting on the horizon), I mentally flog myself for it instead of giving myself a bit of a break.

Making sure I’m not making excuses.

The truth is that I need to eat right now. I’m not eating anything off plan; just more of it, as I work to overcome both borderline anemia and a potassium deficiency. I understand how this came about; I am on doctor-prescribed supplements, but I also need high-quality food. I’ve had to accept that weight fluctuations right now aren’t as important as being healthy enough to meet surgery head-on. I will also have to adapt during recovery — and then I can work on getting back to where I was before all this came about.

I don’t like being patient about anything, but I know patience is what I need, at the moment. I also need to understand that just because my brain does a little flip out any time my weight doesn’t do what I hope for, does not mean that I’ve gone backward. This is, for the time being, part of my process.

There is still a part of my brain that screams at me that my weight loss isn’t legit because I’ve gained a few pounds back. (And by “a few”, I mean I’ve been rambling around 5-10 pounds above my low.) I know most of it is water because of the fit of my clothes and my body’s reaction. But there’s a gremlin that kicks a chunk of my non-thinking brain and tries to insinuate that I might as well have gained back all of a 183-pound loss — which is obviously flawed logic.

I’m staying busy, though. I’m not using this as an excuse to eat bad things. I’ve been keeping up with my step goals and expect to have 8,000 steps/day by the time surgery rolls around. I’m doing everything I can to get to the other side of this, because I know I’m giving myself one of the greatest gifts I can: working hard to get past the things that hold me down.

(Sorry, no video today — I’m short on time.)

Centerfield

 

My favorite sport is fastpitch softball. I never played it, but my daughter did, and we spent many a weekend on the road to tournaments. I always used to maintain that if her team held in there until the parking lot was empty, we’d done well; that means you’re in the championship game.

If you don’t know anything about fastpitch, it’s a lot like baseball, but better. It’s rarely a slugfest, for one thing; not because the girls aren’t capable of sailing a grand slam over the fence — I’ve seen that plenty of times. No, it’s because they use a lot more tools to win the game. It’s not just hitting and bunting; it’s slapping, it’s playing the short game, it’s sac bunts, it’s movement of the ball.

Real, Actual Daughter, pitching in college

My daughter was a pitcher. She had a couple of great pitching coaches, and they didn’t dwell on how fast she could throw, though she had speed; they worked on how she could move the ball and hit her targets. Curveballs that made batters back up, only to have the umpire call ssstttrrrriiiiiiikkkkkeee!! Rise balls that inevitably had batters swatting at them, and if they connected at all, went straight up in the air for an easy catch and out. Working the umpire’s strike zone so she could get those strikes called when she needed them.

It’s never as easy as throw the ball over the plate, hit the ball, catch the ball, throw the ball. It’s about strategy and long-term goals.

My journey has never been easy. I’ve had to learn a lot of strategies to get the results I want. I’ve had to put in some long days and hard nights to get one step further down the road when it seems, at times, I’ve taken three steps back. I’ve had to overcome plenty of obstacles to get to the championship game; and when you play at this level, every game ends up being a championship game. You play it to win.

This past Tuesday, I went through my pre-surgical tests, only to be told that if my potassium levels were that low on the day of surgery, they would have to refuse me. I am on high blood pressure medicine that leaches away potassium, and chances are, I’m healthy enough now that we might have to consider backing off the dosage. In the meantime, I’ve been prescribed potassium to bring my numbers up. I’ve also been told I’m borderline anemic, which I probably brought on unknowingly when my primary doctor and I opted to experiment with thyroid medications. I’ll know when tests come back if we need to reconsider dosage on that, as well.

To confound matters, my regular doc can’t understand why my tests were perfectly normal three weeks ago, so he sent me back to the vampire (sorry… phlebotomist!) for yet another blood test. He wants to see if it comes back like the one earlier in the week. At this point, I’m beginning to feel like a pin cushion.

I managed to get my surgical clearance, but I still have work to do between now and my surgical date — my current championship, if you will. I still have to work my strategies and keep at the hard fight; not just until surgery, but until the day I’m cleared after surgery, after physical therapy, after three straight weeks of spending a total of six hours a day strapped into a CPM machine, after walking with a walker — a cane — and then unaided.

Between now and then, I still need to push forward, overcome the things that stand in my way (which there seems to be on a daily basis, right now), get through surgery, and find the strength within me to do the best job possible in recovery.

I wish I could say it’s smooth sailing from here, but the real game has just begun.

(PS: this song is dedicated to both my husband and daughter, because I know they both despise it. 😉 )

 

Closer

 

I admit that I have no idea what to write, this morning — so I’ll just tell you where I am, mentally, just a little over three weeks out from knee surgery.

That’s what weighs on my mind the most, these days. I’ve done pretty much everything I can possibly do to prepare myself, but the mental part of it gets to me at times. I feel as if time is slipping away and I haven’t done everything I planned to do, which overwhelms me. I did misjudge some things; I figured I would. It’s human nature, after all.

The rest? I know my nature well enough to have anticipated that I would feel this way, a bit. What I didn’t anticipate was needing more self-care than I allotted for. I guess, in my mind, I just figured life would continue, I’d be working away and doing the things I’d normally do, and then stop for surgery, to resume at some point after adequate time for recovery. (I’m self-employed, so that point where I feel comfortable resuming work is up to me.)

I was wrong about that. I didn’t anticipate that I’d feel so mentally claustrophobic, yearning for a breakout so I can step away from the worrying. I’ll get a brief respite this weekend, but I really should have planned for more of a mental break in preparation. After all, this is a huge thing for me; a long time in coming.

I knew over a decade ago that this day would eventually come. The same surgeon who will be performing my knee replacement told me so; I’ve had a previous surgery to remove bone spurs and mend a meniscal tear. I’ve also spent most of my adult life over 300 pounds, and I’ve done a great deal of damage to both knees. Thank goodness there’s a way to repair that, and thank goodness a second time for having taken all the necessary steps to fight for it.

I thought I’d be more excited. And — well — I am, but I’m also fearful. Aren’t we all, when we are on the brink of a major change in our lives, whether it’s marriage, starting a family, changing careers, changing focus? I suppose it’s natural that I’d be dealing with a bit of stage fright.

But this is where I am, right now, the closer I get. I have no intentions of backing away from the decision to move forward with surgery. I can’t stop, now — and I’m not considering it. My pre-surgical appointments are this coming week, as well as a follow-up with my own doctor; it’s Medical Week, I suppose. And knowing that makes this all the more real.

 

I (Don’t) Like Big Buts

[As a follow-up to last week, I’ll state quickly that my blood tests came back in excellent range, and I’ll be testing in another couple of weeks to see if changes we’re trying will make a difference. I am also now 182.8 pounds down and closing in on my next short goal.]

 

Like big butts? I’ll be honest. I don’t like big buts. Notice the difference?

The word but has stopped me from doing a lot of things over the years. I might have said it, and if not, I certainly meant it. I’m pretty sure I’m not alone.

I’d go to that reunion, but I can’t lose 100 pounds in less than a month, so I think I’ll skip it. (I can’t tell you how many times I’ve heard this one; just pick whatever amount of weight and substitute it in.) I can’t possibly walk around downtown without a lot of pain, but I’d hold you back, so I won’t go.

Or the reverse: “Gosh, you look great!” “Thanks, but I still have a long way to go.” (Oh, yep, I’ve said exactly that, far too many times.)

But, but, but… I can’t tell you how many times I’ve stood in my own way and sabotaged myself with a stupid 3-letter word. BUT.

Always fight. Keep fighting. Maybe you’ll get a shrubbery out of the deal.

Guess what? I’m going to a high school alumni band reunion event in less than a month. Am I at my high school weight? Oh heck, no, and I seriously doubt few there actually are. So what? I wasn’t all that popular in high school, anyway, so — take me as I am, or it’s your loss. I am a work in progress. I no longer make apologies. Apologizing for who I am is just plain silly.

I used to not be able to walk far at all, so I felt horrible about holding other people back. Instead of letting that get me down, I worked on it. At first, I made compromises; my husband and I used a travel wheelchair so we could still go do the things we wanted without worrying about physical limitations. I graduated to planning out my trips so I’d know, for sure, I’d be able to handle it. Now, I can get around pretty darned well, even though I’ll have knee replacement surgery in 32 days. I’ll be damned if I stand in my own way and hold myself down.

Make no mistake. I had to fight hard to get where I am. I didn’t let but stand in my way. Doing the best you can do in any situation is never a compromise; giving up because you don’t want to face it? That’s not even a compromise.

I was not always a fighter. I have had to learn to dig down and find the strength to push forward, to find a way to make things work instead of letting myself down with a “but”.

Because, quite honestly, there’s always a “but” waiting to drag you down.

But is an excuse. It’s self-sabotage. It’s taking the easy way out, most of the time. But isn’t the option of someone willing to fight and keep fighting until they get what they’re after.

And I will finally get what I’m after. No ifs, ands, or… well, you know. 😉

Keep fighting, friends. That’s what I’m gonna do.